Regeneron is to pay $256 million in cash to acquire “substantially all” of 23andMe’s assets, including its massive biobank of around 15 million customer genetic samples and data.
Regeneron is to pay $256 million in cash to acquire “substantially all” of 23andMe’s assets, including its massive biobank of around 15 million customer genetic samples and data.
Hindsight is 20/20. ITT lots of folks proud of themselves for not falling into this trap, but try to understand, 23andme was named “invention of the year” by Time in 2008. That’s before google and facebook even began monetizing private data. Data privacy, or even the power of data itself, was hardly appreciated by private companies let alone in the public consciousness.
Orphans, people with absent parents, decedents of slaves, the list goes on for folks who would understandably go for an affordable way to access their genetic history. Sure, their were plenty of folks since then who had all the information and still went for it, but what about all those who became aware of it too late and when they requested their data be deleted were told it would be kept for 3 years!
I’m saddened to see more victim blaming here than anger at the ToS/privacy policy fuckery and a complete lack of consumer protection.
perfect, I am now openly pro Trump, Zuckerberg and also Putin, all of whom have been named Time Person of the year from 2007 onwards. This is because I don’t even bother to understand what Time nominates, but also entirely willing to base very important political or life decisions around this. If you call this out as being incredibly fucking stupid you are victim blaming me. Just because I do not have ever read the magazines nominations of awards that I base my being around does not mean you can attack me for this.
This is slightly more sympathetic but also 23andme would help you zilch in this scenario because this is not what they do. But I do understand how coming from a vulnerable emotionial position might lead you there.
Having said beforementioned, there is 0 consumer protection that would prevent this scenario. This bullshit has to rank among the largest DNA Databse in the world, and, as such, would be the target and has probably been leaked to every major and minor intelligence service in the world since years, even before they just openly sold it off to god knows who. The crux of data security is that while it is a society wide issue, it is also a personal issue. You can’t outregulate some idiot just handing over all their data for funsies or SECURITY to whatever entity, to point out the big ones. This holds true regardless of socioeconomic system in place, because the entire point is that it is your data, not anybody elses.
Also, and I do agree I am malding over this, I want to point out that people have been warning about 23andme for a decade for obvious reasons and largely got ignored as being doomer nerds
I didn’t get the choice when my easily fooled parents decided it was a good idea.
We tried the ‘delete your 23 and me data’ but who the fuck knows if that works.
Now some corpos own my DNA probably.
Thanks mom.
People are too trusting
This is probably the worst thing that will ever happen to you in your life
Yeah it’s weird seeing so many people dump on 23andMe users. My grandmother got to meet her biological daughter that she was forced to give up for adoption. 23andMe as a service is amazing and has been life changing for some people. And all things considered Regeneron buying them is a good thing. They’re already set up to protect sensitive patient data.
By 2008 we were well into the “you should know better than give up personal data” era. That is no excuse. People are just stupid and don’t care.
There were all sorts of publications telling people to protect their personal information, online and in the meat world by 2001, let alone 2008.
I don’t want to victim blame, but going right into this with all the warnings seems pretty stupid to me.
Now what does suck, and horribly so, is that there should be nothing of value gained from that data: there should be laws against nearly everything they could use for corporate advantage, exploitation, identity, etc. With severe consequences.
That is the failure.
It shouldn’t take hindsight to read the fine print in your 23andme contract. They straight up told folks, that taking their test meant signing over ownership of your DNA samples to them, for whatever future purpose they had in mind.
Anyone who didn’t clue in to the fact that meant they were paying that company to own the rights to their DNA, is an idiot.
You’re probably affected by this even if you didn’t participate.
The thing about genetics is you can make reasonable predictions about individuals if you have data on their relatives. Heck, you can reasonably make regional predictions with genetic data that will be fairly accurate.
If any of your parents, grandparents, aunts, uncles, cousins, siblings, etc took this test, then you are now at least a little exposed.
I’ve publicly uploaded mine to anywhere that’s take it anyway who cares. Unless you’re American there’s no huge risk. If they use the anonymised data to discover new drugs and treatment then I’m glad to contribute. It’s only <0.1% of your genome.
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It’s not a individual problem of personnal responsibility